September 2024

It's been a while since my last post and a lot of things have taken place. Back in April my cousin and I got an apartment together and became roommates, and yes co-habitating has gone extremely well and we enjoy each other's company. 

 Out of all the places I've lived in as an adult this one is my favorite so far. 

 As this was happening we both had to set strict boundaries with two people one of them being no contact and the other limited contact due to circumstances outside of our control. This has made a world of a difference as we intend to no longer tolerate behaviors we were forced to put up with growing up and allows so much more peace in our day to day lives. 

 We also adopted a kitten from a local shelter and he is just the cutest and both of us love having him as part of the family. 

 A recent visit to my primary care doctor revealed stable labs which is great compared to last year when I had to get infusions to bring levels up. the next step is to hopefully find an orthopedic specialist who can determine if custom AFO'S/ orthotics are a good option for my legs but that's been easier said then done with the first one originally referred to didn't accept my insurance; and the second deciding to not take one another patient with my insurance even though they accept it. 

 I will get on with trying to get a 3rd option but just haven't had the extra energy to deal with it. My doctor also started me on a new medication for the tremors and involuntary movements and so far it has been successful, also received pain medication for whenever the discomfort becomes unbearable and leaves me in tears. 

 Got to experience an escape room for the first time, something I had been wanting to do for a long time thinking it was going to be so exciting and entertaining but now I'm okay with never dong it again, very underwhelming and not at all what I was originally expecting. 

 My 28th Birthday is coming up at the end of the month, when you have a condition like EDS it helps remind me that every year I'm still here to celebrate is a gift and to cherish it. 

 After that in October I will be grateful for continued freedom in singleness instead of what would have been a 2nd anniversary of a doomed marriage.